[Viva] new meds

Thu Feb 9 10:47:57 PST 2017

Hi Shelly. Way. Ack when I was on ditrical o believe and they switched from capsule to caplet and I couldn't tolerate it. I argues with my doc and he switched me back until they stopped making it completely. I was sensitive the binders like Val. Good luck and switch meds. 

Sent from my iPhone

> On Feb 9, 2017, at 10:34 AM, shelly tognazzini <shetognazzini at gmail.com> wrote:
> 
> Hey Anne,
> 
> Thanks so much for your feedback and support!! Initially I requested to change meds due to a close to 30% decline in my bone density in only two years. Studies on bone density in men on Truvada have produced evidence that highlights bone density issues.  No studies on women. My thought was if men are experiencing this then women will probably more, so I asked about new meds. Triumeq was suggested I think probably because of pharma promo, although I trust my doc, it's the way it goes.  Sad but true.  Thanks so much Anne and Val! Will keep you posted. Not going to prolong this but will wait till end of month and see.  Funny thing is since being off Truvada, my bones actually feel stronger. My knee injury is much less reoccurring and overall my body feels stronger.
> 
> So nice to hear from you Anne. Great support.  Hugs to all. Will keep you posted.💞
> 
> 
>> On Feb 9, 2017 10:18 AM, "anne bonner" <thewoodbuffalo at gmail.com> wrote:
>> Hey Shelley. I don't know anything about this drug but I do know I took Kaletra for a year and it was the worst year ever with constant nausea and diarrhea, I had to take gravol and imodium every day and I felt like shit. I told my doc and he just told me my body would get used to it. I was too young to know that I could make a fuss and have control over what went into my body. When I switched docs and got onto a way better regimen I couldn't believe how much better I felt. I think you know more and have more support now than I did back then! So you know that if meds aren't working for you, tell your doc to switch them! Don't suffer needlessly and don't let your doc pressure you into taking meds that suck.  You probably know all this :)
>> Also thanks for sharing. I've been considering switching onto this one pill but I've been afraid of side effects so I probably won't. 
>> Also thanks for talking to that doc Val!!
>> 
>> anne
>> 
>>> On Thu, Feb 9, 2017 at 8:55 AM, shelly tognazzini <shetognazzini at gmail.com> wrote:
>>> Dear Val,
>>> Oh my gosh, thank-you so much.  I will be doing blood work next week and see how it goes. Yesterday I literally had to stay in just to be close to the bathroom.  And sleep has been off as well, although it's never been great it is noticeably changed.
>>> 
>>> Thanks so much Val! I really appreciate your sharing! Great work you've been doing girl. Big hugs 
>>> Shelly
>>> 
>>> 
>>>> On Feb 9, 2017 2:51 AM, "valerie nicholson" <vjnicholson at live.ca> wrote:
>>>> 
>>>> 
>>>> Hi Shelly 
>>>> 
>>>> I took Triumeq as it is the combo of the two ARV's I was on kivexa and dolutegravir which i had no problems with .  On the Triumeq i had diarrhea and could not sleep .... discussing this with the pharmacist she said "I could not have these side effects as it was the same drugs"  i did not sleep for 3 months my days and nights got mixed up etc .  I then had a conversation with Evelyn at OAk Tree and she said it is probably the binder they use that is causing my side effects.  I am now back on kivexa and dolutegravir with no problems except the 2- 3 weeks it took the binder to get out of my system 
>>>>  
>>>> At a conference i attended  a Dr was presenting on how great Triumeq was and they saw only  2% having a side effect 
>>>> 
>>>> I asked in the drug  trials   how many were women  he said it was only 3 women 
>>>> I then asked since releasing the drug had they had reports on side effects he said yes and they were with women and higher numbers than what they expected .  He then asked me how i knew this I replied  research and lived experience 
>>>> 
>>>> I hope this helps 
>>>> 
>>>> Valerie 
>>>> From: Viva <viva-bounces at lists.resist.ca> on behalf of shelly tognazzini <shetognazzini at gmail.com>
>>>> Sent: Wednesday, February 8, 2017 10:49 AM
>>>> To: viva
>>>> Subject: [Viva] new meds
>>>>  
>>>> Hi all,
>>>> 
>>>> I recently, last month changed meds to the new one pill a day  Triumeq  (due to bone density issues I was having on Truvada and Raltegravir)  I am experiencing some pretty nasty nausea and diarreaha.  Is anyone one this new med and have any words of experience....?
>>>> 
>>>> Thanks
>>>> 
>>>> 
>>>>  	
>>>> 
>>>> Get a signature like this: Click here! 
>>>> 
>>>> _______________________________________________
>>>> Viva mailing list
>>>> Viva at lists.resist.ca
>>>> https://lists.resist.ca/cgi-bin/mailman/listinfo/viva
>>>> 
>>> 
>>> _______________________________________________
>>> Viva mailing list
>>> Viva at lists.resist.ca
>>> https://lists.resist.ca/cgi-bin/mailman/listinfo/viva
>>> 
>> 
>> 
>> _______________________________________________
>> Viva mailing list
>> Viva at lists.resist.ca
>> https://lists.resist.ca/cgi-bin/mailman/listinfo/viva
>> 
> _______________________________________________
> Viva mailing list
> Viva at lists.resist.ca
> https://lists.resist.ca/cgi-bin/mailman/listinfo/viva
-------------- next part --------------
An HTML attachment was scrubbed...
URL: <http://lists.resist.ca/pipermail/viva/attachments/20170209/04d2058e/attachment.html>