[Viva] new meds

anne bonner thewoodbuffalo at gmail.com
Thu Feb 9 10:18:33 PST 2017


Hey Shelley. I don't know anything about this drug but I do know I took
Kaletra for a year and it was the worst year ever with constant nausea and
diarrhea, I had to take gravol and imodium every day and I felt like shit.
I told my doc and he just told me my body would get used to it. I was too
young to know that I could make a fuss and have control over what went into
my body. When I switched docs and got onto a way better regimen I couldn't
believe how much better I felt. I think you know more and have more support
now than I did back then! So you know that if meds aren't working for you,
tell your doc to switch them! Don't suffer needlessly and don't let your
doc pressure you into taking meds that suck.  You probably know all this :)
Also thanks for sharing. I've been considering switching onto this one pill
but I've been afraid of side effects so I probably won't.
Also thanks for talking to that doc Val!!

anne

On Thu, Feb 9, 2017 at 8:55 AM, shelly tognazzini <shetognazzini at gmail.com>
wrote:

> Dear Val,
> Oh my gosh, thank-you so much.  I will be doing blood work next week and
> see how it goes. Yesterday I literally had to stay in just to be close to
> the bathroom.  And sleep has been off as well, although it's never been
> great it is noticeably changed.
>
> Thanks so much Val! I really appreciate your sharing! Great work you've
> been doing girl. Big hugs
> Shelly
>
> On Feb 9, 2017 2:51 AM, "valerie nicholson" <vjnicholson at live.ca> wrote:
>
>>
>>
>> Hi Shelly
>>
>> I took Triumeq as it is the combo of the two ARV's I was on kivexa and
>> dolutegravir which i had no problems with .  On the Triumeq i had diarrhea
>> and could not sleep .... discussing this with the pharmacist she said "I
>> could not have these side effects as it was the same drugs"  i did not
>> sleep for 3 months my days and nights got mixed up etc .  I then had a
>> conversation with Evelyn at OAk Tree and she said it is probably the binder
>> they use that is causing my side effects.  I am now back on kivexa and
>> dolutegravir with no problems except the 2- 3 weeks it took the binder to
>> get out of my system
>>
>> At a conference i attended  a Dr was presenting on how great Triumeq was
>> and they saw only  2% having a side effect
>>
>> I asked in the drug  trials   how many were women  he said it was only 3
>> women
>> I then asked since releasing the drug had they had reports on side
>> effects he said yes and they were with women and higher numbers than what
>> they expected .  He then asked me how i knew this I replied  research and
>> lived experience
>>
>> I hope this helps
>>
>> Valerie
>> ------------------------------
>> *From:* Viva <viva-bounces at lists.resist.ca> on behalf of shelly
>> tognazzini <shetognazzini at gmail.com>
>> *Sent:* Wednesday, February 8, 2017 10:49 AM
>> *To:* viva
>> *Subject:* [Viva] new meds
>>
>> Hi all,
>>
>> I recently, last month changed meds to the new one pill a day  *Triumeq *
>>  (due to bone density issues I was having on Truvada and Raltegravir)  I am
>> experiencing some pretty nasty nausea and diarreaha.  Is anyone one this
>> new med and have any words of experience....?
>>
>> Thanks
>>
>>
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