[Viva] Fwd: Self Care Catalysts

Tue Jan 19 22:12:32 PST 2016

---------- Forwarded message ----------
From: Allison Carter <allison_carter at sfu.ca>
Date: Tue, Jan 19, 2016 at 4:26 PM
Subject: Fwd: Self Care Catalysts
To: Margarite Sanchez <margaritesanchez at gmail.com>

Thought this might be of interest to ViVA? I know nothing about it. I think
its a study to test a self management healthcare app for people living with
HIV.

Best,
Allie

------------------------------
*From: *"Allison Carter" <allison_carter at sfu.ca>
*To: *christinatom45 at gmail.com, "claudette cardinal" <
claudette.cardinal at hotmail.ca>, ggiggles2011 at gmail.com, kangela at sfu.ca,
karenchiwos70 at gmail.com, kathwebster at shaw.ca, "patience chamboko" <
patience.chamboko at yahoo.ca>, slin at cfenet.ubc.ca, tammychiwos at gmail.com,
vjnicholson at live.ca
*Sent: *Tuesday, January 19, 2016 4:24:30 PM
*Subject: *Fwd: Self Care Catalysts

Hi everyone,

I was contacted by a market research firm doing an HIV study - it looks
like the company builds patient-centred apps to help patients (with various
conditions) track and own their health data. I think they may be developing
an app for people living with HIV and have launched a study to test it. I'm
not sure of the details, but said I would forward along the info to my
networks. Details can be found in the link and email below. This is not
done by a university, so there was no ethics review. They do say that
consent and privacy is important and the study is not intrusive. If you
have questions or concerns, I would call them. They're offering a fairly
good honorarium ($300). Feel free to share with your networks.

Kayla, can you share this on social media?

http://www.selfcarecatalysts.com/ResearchStudy.php

Best,
Allie

*****************
*Allison Carter, MPH, PhD Student*
Canadian Association for HIV/AIDS Research (CAHR) Doctoral Fellow
Canadian HIV Women's Sexual and Reproductive Health Cohort Study
(CHIWOS) Research Assistant

Simon Fraser University, Faculty of Health Sciences
BC Centre for Excellence in HIV/AIDS, Epidemiology and Population Health
St. Paul's Hospital, 608-1081 Burrard Street
Vancouver, BC V6Z 1Y6 Canada

(t) 604-558-6688 | (e) allison_carter at sfu.ca | (f) 604-559-9800 | Twitter
@MissAllieCarter <https://twitter.com/missalliecarter>

Follow CHIWOS on Facebook <https://www.facebook.com/CHIWOS> and Twitter
<https://twitter.com/chiwosresearch>

------------------------------
*From: *"Allison Carter" <allison_carter at sfu.ca>
*To: *"Emma Harris" <emma at selfcarecatalysts.com>
*Cc: *"Samantha Pavlofsky" <Samantha at selfcarecatalysts.com>
*Sent: *Tuesday, January 19, 2016 4:15:18 PM
*Subject: *Re: Life and Love After HIV initiative

Thanks Emma. I think I have the info I need. I'll share this with our
networks via email and social media. Best of luck with the project. It
sounds very interesting!

Best,
Allie

*****************
*Allison Carter, MPH, PhD Student*
Canadian Association for HIV/AIDS Research (CAHR) Doctoral Fellow
Canadian HIV Women's Sexual and Reproductive Health Cohort Study
(CHIWOS) Research Assistant

Simon Fraser University, Faculty of Health Sciences
BC Centre for Excellence in HIV/AIDS, Epidemiology and Population Health
St. Paul's Hospital, 608-1081 Burrard Street
Vancouver, BC V6Z 1Y6 Canada

(t) 604-558-6688 | (e) allison_carter at sfu.ca | (f) 604-559-9800 | Twitter
@MissAllieCarter <https://twitter.com/missalliecarter>

Follow CHIWOS on Facebook <https://www.facebook.com/CHIWOS> and Twitter
<https://twitter.com/chiwosresearch>

------------------------------
*From: *"Emma Harris" <emma at selfcarecatalysts.com>
*To: *"Allison Carter" <allison_carter at sfu.ca>
*Cc: *"Samantha Pavlofsky" <Samantha at selfcarecatalysts.com>
*Sent: *Tuesday, January 19, 2016 8:28:19 AM
*Subject: *Re: Life and Love After HIV initiative

Hi Allie,

Here is a link to the study:
http://www.selfcarecatalysts.com/ResearchStudy.php

Would you like to set up a call to further discuss details?

Kindly,
Emma

-- 
*Emma Harris, MSc  *
Analyst

*Self Care Catalysts*
MaRS Centre, South Tower, Suite 200
101 College St. Toronto, ON M5G 1L7
T 416-673-6676  |  C 905-466-6663
www.selfcarecatalysts.com

On Mon, Jan 18, 2016 at 4:28 PM, Emma Harris <emma at selfcarecatalysts.com>
wrote:

> Hi Allie,
>
> Thank you for your interest. Here is the copy that will be added to our
> website tomorrow (and I will send you the link once it is live):
>
> *Self Care Catalysts is conducting a compensated, privately commissioned
> market research study on the experiences of people living with HIV. We are
> looking to recruit 200 individuals living with HIV across Canada to discuss
> topics including: a) treatment management; b) health values; c) coping with
> the condition; and, d) aspirations for patient support. All information
> will remain strictly confidential, and all data utilized for research
> purposes will be de-identified and aggregated. Results of the study will
> not be made public. *
>
>
>
>
> *This study involves a 20-minute online survey plus a 7-day online journal
> using a few short questions, which will take no more than 5 minutes per
> day. For this survey we are pleased to offer compensation of $100. *
>
>
> *In addition, for those who are interested and who are eligible to
> participate, a 60-minute phone interview will take place. For this
> interview, additional compensation of $200 will be offered.*
>
>
>
> *If you are interested in participating in the study, please contact Emma
> Harris at emma at selfcarecatalysts.com <emma at selfcarecatalysts.com> or
> 416-673-6676 <416-673-6676>.*
>
>
>
> *Please don’t hesitate to email or call for further information. *
>
>
> As this is a market research study, no ethics review is needed. That being
> said, consent and personal protection of privacy is of utmost importance.
> The study is privately funded, and is intended to better understand the
> patient journey with respect to life with HIV, from diagnosis until now.
> This study is external to the healthcare system, and questions are not
> designed to be intrusive or uncomfortable.
>
>
> I would be happy to schedule a phone call to further discuss any
> questions, if you'd like?
>
>
> Kindly,
>
> Emma
>
> On Mon, Jan 18, 2016 at 3:44 PM, Allison Carter <allison_carter at sfu.ca>
> wrote:
>
>> Hi Emma,
>>
>> Maggie forwarded your email to me.
>>
>> This looks interesting. I'd be happy to share this with my networks.
>> Could you send more info or a poster that has the details and contact info?
>> Has this work been approved by an ethics board?
>>
>> Thanks!
>>
>> Best,
>> Allie
>>
>> *****************
>> *Allison Carter, MPH, PhD Student*
>> Canadian Association for HIV/AIDS Research (CAHR) Doctoral Fellow
>> Canadian HIV Women's Sexual and Reproductive Health Cohort Study
>> (CHIWOS) Research Assistant
>>
>> Simon Fraser University, Faculty of Health Sciences
>> BC Centre for Excellence in HIV/AIDS, Epidemiology and Population Health
>> St. Paul's Hospital, 608-1081 Burrard Street
>> Vancouver, BC V6Z 1Y6 Canada
>>
>> (t) 604-558-6688 | (e) allison_carter at sfu.ca | (f) 604-559-9800 | Twitter
>> @MissAllieCarter <https://twitter.com/missalliecarter>
>>
>> Follow CHIWOS on Facebook <https://www.facebook.com/CHIWOS> and Twitter
>> <https://twitter.com/chiwosresearch>
>>
>>
>>
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