[Viva] common cold

Mon May 30 11:12:38 PDT 2011

Extremely interesting Kath, I'm glad you sent that and way to go Shannon!
 48% wow, NICE!  Good for you!  I sent an email to Dr. Montaner about the
whole issue, I felt a little silly sending it.. but he said the observation
was interesting and he copied his colleagues on it.

I am pretty lucky to have a 870 CD4, undetectable viral load and 38% after
22 years with HIV, so I guess I must be doing something right - I definitely
put it down to good quality vitamins.  I am very allergic to the HIV meds
though and have had to go off so many from reactions to them.  The worst was
Steven Johnson's Syndrome (believe me you NEVER want to get that) but I also
got neurotic on Sustiva and Ritonavir.  I thought I was being a very strong
person and standing up to people but apparently not! hah!

Well that is very interesting and I hope more people join in.  I will try to
remember the meds I had and their various side effects, some are not around
too much now but for a start here they are

D4T Diarrhea
Sustiva neurotic
Ritonavir neurotic
3TC stopped taking it because it was with D4T
DDI Doctors decided not a good idea because of D4T reaction
Nevirapine - Steven Johnson's Sydrome
Tenofavir - Kidney and creatinine problems

Psychological medication - pretty much allergic to everything except Celexa
and Clonazepam

Always had a problem with body shape since being on the meds - no butt! wide
back and bigger tummy.

BUT STILL HAPPY TO KEEP ON TICKING!

Denise

On Mon, May 30, 2011 at 10:55 AM, Shannon McKee Carlisle
<mckee_law at msn.com>wrote:

>   Hi Denise,
>
> I believe I’m at 48%... I think. I was infected in 2001 and diagnosed in
> 2002. Moisture and air quality may be playing a role here in the lower
> rainland. For meds, I’m on Atazanavir, 3TC, Ritonavir, and Tenofovir. I
> believe I started meds in 2008. I am trying not to take antibiotics because
> I don’t want to deal with the fungal infections that I tend to get as a
> result. I should be strong enough to fight this one off all on my own, I
> hope.
>
> Take care,
>
> Shannon
>
>  *From:* Denise Becker <dbecker106 at gmail.com>
> *Sent:* Monday, May 30, 2011 10:46 AM
> *To:* viva <Viva at lists.resist.ca>
> *Subject:* Re: [Viva] common cold
>
> Hi everyone!
>
> Oh,* *Shannon!  Yes, of course I remember you are in Abbotsford now.  You
> have a  very good CD4, how long have you had HIV? Do you know your
> percentage?  I had quite a few colds in Abbotsford too before moving to
> Kelowna - it may be because Kelowna is so dry.  There are so many questions
> I would like to ask because I think this is interesting to know why some
> women are not getting colds.  I wonder if it has anything to do with what
> meds you are on.  I am on Kivexa and Atazanavir but just quit Tenofovir
> because it was giving me kidney problems.  I am allergic to sulphur
> (spelling?) and can't have that in any antibiotics or cold medicine that
> contain it... I get a rash and have trouble breathing.
>
> It would be really interesting to do a survey of everyone and find out what
> reactions they have had to various meds and if they have experienced any
> colds.  Would any of you be interested in knowing things like this?
>
> I am tired of research but would like to see Viva do a survey some time of
> some things - we are actually a very strong organization to have so many
> positive women who communicate to each other.
>
> Thanks Shannon.
>
> Denise
>
> On Mon, May 30, 2011 at 8:27 AM, Shannon McKee Carlisle <mckee_law at msn.com
> > wrote:
>
>>   Hi Denise,
>>
>> I am happy to share. I’m in Abbotsford. My counts are 1100 CD4,
>> undetectable viral load. Except for my high cholesterol and bilirubin,
>> nothing else is flagged in my blood work. My vitamin D was a little low
>> which is of course from a lack of sunshine. I am pretty fortunate that Dr.
>> Burdge started me on ARV’s before my CD4 dropped below 400 that may be why
>> my CD4 is so high, but I’m not certain. I can’t believe how loopy cold meds
>> make me feel though.... hehehe.
>>
>> Take care,
>>
>> Shannon
>>
>>  *From:* Denise Becker <dbecker106 at gmail.com>
>> *Sent:* Saturday, May 28, 2011 12:04 PM
>>   *To:* viva at lists.resist.ca
>> *Subject:* Re: [Viva] common cold
>>
>>   oh! that is interesting, Shannon.  I would like to ask you some
>> questions about where you live and what your counts are.  If you feel like
>> replying then do but I don't want to get too personal so if it is a problem
>> when don't worry about it.
>> Denise
>>
>> On Sat, May 28, 2011 at 11:57 AM, Shannon McKee Carlisle <
>> mckee_law at msn.com> wrote:
>>
>>>   Hi Denise,
>>>
>>> I have a runny nose, congestion, a productive cough, lots of phlegm, sore
>>> throat, did I mention a runny nose... hehehe. I have no time for a cold, so
>>> Tylenol Cold, Day and Night formula is my new best friend....hehehe.
>>>
>>> Take care,
>>>
>>> Shannon
>>>
>>>  *From:* Denise Becker <dbecker106 at gmail.com>
>>> *Sent:* Thursday, May 26, 2011 7:33 AM
>>>  *To:* viva at lists.resist.ca
>>>  *Subject:* Re: [Viva] common cold
>>>
>>>   Wow, that is a great CD4 count Shannon and your husband's is good
>>> too!  So do you have a cold or cough or what?
>>>
>>> I like your ideas re. PWN, a fundraiser or part of the Walk proceeds
>>> would be great.
>>>
>>> Denise
>>>
>>> On Wed, May 25, 2011 at 8:57 PM, Shannon McKee Carlisle <
>>> mckee_law at msn.com> wrote:
>>>
>>>>   I have these three teenage girls age 14, 16 and 17. Everyone has been
>>>> sick in my house for at least a month now. Everyone has been on a round of
>>>> antibiotics except me. My husband has been on his second round. His CD4 is
>>>> around 700 and mine is a whopping 1100. I am sick though I think I am just
>>>> too busy to notice. So, this year we have had two significant colds that
>>>> have caused prolonged sickness within our family, especially my husband.
>>>> Which is crappy. No flus though. I make certain that everyone gets their flu
>>>> shot every year.
>>>>
>>>> I hope everyone is doing well,
>>>>
>>>> Oh ya...in regards to the PWN thing .... I really don’t mind if they can
>>>> make a donation; or they could potentially ‘fund a by and for’ project that
>>>> VIVA facilitates that would employ a positive woman; they could put on a
>>>> fundraiser for VIVA; they could advertise for increased membership to
>>>> VIVA..... otherwise.... I have personally suffered too many sleepless nights
>>>> worrying about the autonomy of this group.... I would hate to start worrying
>>>> again.....
>>>>
>>>> Love to all,
>>>>
>>>> Shannon Carlisle
>>>>
>>>>
>>>>
>>>>  *From:* Denise Becker <dbecker106 at gmail.com>
>>>> *Sent:* Wednesday, May 25, 2011 3:23 PM
>>>> *To:* viva <Viva at lists.resist.ca>
>>>> *Subject:* [Viva] common cold
>>>>
>>>>  I am just wondering what other Viva members have suffered in terms of
>>>> the common cold.  Since I have been on the meds and I moved to the Okanagan
>>>> in 1997, I cannot ever remember having a cold.  Has anyone else had a bad
>>>> cold or even a common cold?  I am just wondering if there is something to
>>>> this.  Admittedly, I don't have children to pass one on to me!
>>>> Denise Becker
>>>> ------------------------------
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